Other Resources

DISCLAIMER

By including the links below, The Stop ALD Foundation does not necessarily endorse any of the organizations listed; nor do we vouch for the accuracy of the information contained on their respective web sites.

Sites that Discuss Adrenoleukodystrophy

• The ALD Foundation
• ALD Life
• The Myelin Project
• Oliver's Army
• Orpha.Net -- European Rare Diseases Organization and Their Discussion on ALD and many great links & resources
• The United Leukodystrophy Foundation
• US ClinTrial.gov -- Listing of ongoing US ALD clinical trials
• WikiPedia on ALD
• X-Linked ALD Database

For Physicians, Scientists & Healthcare Workers

• Avoiding the Misdiagnosis of Adrenoleukodystrophy: Distinguishing ALD from ADD/ADHD

Stem Cell (Cord Blood / Bone Marrow) Transplants Resources 

• The Blood and Marrow Transplant Information Network
• Bone Marrow Donors Worldwide
• Duke University's Pediatric Stem Cell Transplant Program
• National Marrow Donor Program
• University of Minnesota: Fairview University
• Related Donor Cord Blood Program.  For families impacted by a life-threatening disease where a cord blood transplant could be a cure, the cord blood from a new family baby can be collected and stored at no cost to the family and then may be used to treat an affected biological sibling or parent who has a diagnosed disease.

Leading Research Organizations

• Cochin Institute of Molecular Genetics (France)
• Kennedy-Krieger Institute