http://www.stopald.org/news-1 daily 0.75 2024-06-18 http://www.stopald.org/news-1/2024/6/18/leriglitazone-halts-disease-progression-in-adult-patients-with-early-cerebral-adrenoleukodystrophy-ald-in-compassionate-use-study-published-in-brain monthly 0.5 2024-06-18 http://www.stopald.org/news-1/2023/5/31/minoryx-gains-fda-approval-to-initiate-a-phase-3-clinical-trial-in-patients-with-cerebral-adrenoleukodystrophy monthly 0.5 2023-05-31 http://www.stopald.org/news-1/2023/2/26/minoryx-therapeutics-announces-x-linked-adrenoleukodystrophy-data monthly 0.5 2023-02-27 http://www.stopald.org/news-1/2023/2/26/stanford-research-study-on-vitamin-d-needs-input-from-parents-or-guardians-of-boys-with-ald monthly 0.5 2023-02-27 http://www.stopald.org/news-1/2021/1/31/minoryx-presents-topline-results-from-phase-23-study-demonstrating-significant-clinical-benefit-for-adrenomyeloneuropathy-amn monthly 0.5 2021-02-01 http://www.stopald.org/news-1/2019/12/21/stanford-medicine-survey-for-x-ald-caregivers-due-by-feb-28-2020 monthly 0.5 2019-12-21 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1576972251602-98Z8H519257TYVPRD74Q/download.png News - Stanford Medicine Survey for X-ALD Caregivers (due by Feb 28, 2020) http://www.stopald.org/news-1/2019/9/7/ald-newborn-screening-now-in-texas monthly 0.5 2019-09-07 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1567858841970-1BWHOTHUC5BQYXYHUV2O/ribbon-cutting.png News - ALD Newborn Screening Now in Texas! http://www.stopald.org/news-1/2019/6/11/biomarker-identification-safety-and-efficacy-of-high-dose-antioxidants-for-adrenomyeloneuropathy-amn-a-phase-ii-pilot-study monthly 0.5 2019-06-12 http://www.stopald.org/news-1/2018/11/1/families-in-california-who-received-a-positive-ald-newborn-screening-result monthly 0.5 2018-11-01 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1541068131205-10QI8MQKIR014Y71F3ZC/california_state_u-stanislaus.png News - Research Study: Families in California who received a positive ALD newborn screening result Exploring the impact of positive newborn screening results for X-linked adrenoleukodystrophy (X-ALD) among families in California http://www.stopald.org/news-1/2018/1/4/100000-adrenomyeloneuropathy-amn-research-grant-awarded-to-ali-fatemi-md-at-the-kennedy-krieger-institute monthly 0.5 2018-01-04 http://www.stopald.org/news-1/2017/10/5/ny-times-in-a-first-gene-therapy-halts-a-fatal-brain-disease monthly 0.5 2017-10-06 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1507252129200-JV677VHANPL5689XGPFH/06GENES1-superJumbo.jpg News - NY Times: In a First, Gene Therapy Halts a Fatal Brain Disease http://www.stopald.org/news-1/2017/10/4/npr-parents-lobby-states-to-expand-newborn-screening-test-for-rare-brain-disorder monthly 0.5 2017-10-04 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1507151416797-58P4GO9FSL1CALJETJJB/newborn-screening-1-a35f72ad2e704149a5614c846f621c9fc08102aa-s800-c85.jpg News - NPR: Parents Lobby States To Expand Newborn Screening Test For Rare Brain Disorder http://www.stopald.org/news-1/2017/8/26/2017-million-dollar-bike-ride-pilot-grant-program-request-for-applications monthly 0.5 2017-08-27 http://www.stopald.org/news-1/2017/2/5/medday-md1003-clinical-trial-data monthly 0.5 2017-02-06 http://www.stopald.org/news-1/2016/12/25/100000-amn-research-grant-awarded-to-dr-florian-eichler-massachusetts-general-hospital monthly 0.5 2017-01-03 http://www.stopald.org/news-1/2016/9/12/100000-aldamn-research-grant-application-due-sept-23-2016 monthly 0.5 2016-09-12 http://www.stopald.org/news-1/2016/5/7/great-ride-at-upenn-million-dollar-bike-ride-for-rare-diseases monthly 0.5 2016-05-07 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1462648214584-T6WZM7YT15AWMZOFJEXI/image-asset.jpeg News - Great ride at UPenn Million Dollar Bike Ride for Rare Diseases http://www.stopald.org/news-1/2016/3/30/philly-3rd-annual-million-dollar-bike-ride-for-rare-diseases monthly 0.5 2016-03-30 http://www.stopald.org/news-1/2016/2/20/secretary-of-health-and-human-services-accepts-the-recommendation-to-expand-the-recommended-uniform-screening-panel-to-include-x-ald-and-mps-i monthly 0.5 2016-02-20 http://www.stopald.org/news-1/2015/8/29/rfa-for-50000-for-amn-research monthly 0.5 2015-08-29 http://www.stopald.org/news-1/2015/8/22/governor-signs-righter-legislation-for-newborn-screening monthly 0.5 2015-08-22 http://www.stopald.org/news-1/2015/8/10/biotin-european-amn-trial-md1003-ongoing-with-results-expected-summer-2016 monthly 0.5 2015-08-11 http://www.stopald.org/news-1/2015/5/10/successful-million-dollar-bike-ride monthly 0.5 2015-05-11 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1431315076262-6QWAM1BP08359F03RNC2/image-asset.png News - Successful Million Dollar Bike Ride! https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1431315114841-NNVPPS687J6IKUKXVS8L/image-asset.jpeg News - Successful Million Dollar Bike Ride! http://www.stopald.org/news-1/2015/3/16/invitation-to-upenn-2015-rare-disease-million-dollar-bike-ride-ald monthly 0.5 2015-03-16 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1426481370852-DH2JNP8CF9YQLMGD4ZS8/image-asset.png News - Invitation to UPenn 2015 Rare Disease Million Dollar Bike Ride - ALD http://www.stopald.org/news-1/2015/3/13/leukodystrophies-making-a-difference-by-donating-instead-of-discarding monthly 0.5 2015-03-13 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1426221989911-TBL78VI2YVMIVM8QBY8Q/image-asset.png News - Leukodystrophies: Making a Difference by Donating Instead of Discarding http://www.stopald.org/news-1/2015/2/18/penn-orphan-disease-center-announces-first-grant-recipients-from-million-dollar-bike-ride monthly 0.5 2015-02-18 http://www.stopald.org/news-1/2014/8/10/50000-pilot-grant-request-for-applications-rfa-for-adrenomyeloneuropathy-amn monthly 0.5 2014-08-11 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1407731166058-0NB34ZXDIK7O7S6W8Z7E/image-asset.png News - $50,000 pilot grant -- Request for Applications for Adrenomyeloneuropathy (AMN) http://www.stopald.org/news-1/2014/8/4/new-therapies-being-investigated-for-treating-aldamn monthly 0.5 2014-08-04 http://www.stopald.org/news-1/2014/5/9/44000-raised-at-may-2014-upenn-rare-disease-bike-ride monthly 0.5 2014-05-09 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399612847218-NSVRXY48EYQGFTSQ00TC/image-asset.png News - $44,000 raised for ALD at May 2014 UPenn Rare Disease Bike Ride! http://www.stopald.org/news-1/2014/4/13/success-of-aidans-law-leads-to-national-push-for-testing monthly 0.5 2014-04-13 http://www.stopald.org/news-1/2014/4/4/a-brooklyn-boy-who-lost-a-life-but-helped-save-others monthly 0.5 2014-04-04 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1396622299465-F21Q33ZKWLCJ16I2AMTT/image-asset.jpeg News - A Brooklyn Boy Who Lost A Life, But Helped Save Others http://www.stopald.org/news-1/2014/4/4/california-assembly-health-committee-voted-19-to-0-to-move-forward-with-the-legislation-for-ald-nbs monthly 0.5 2014-04-04 http://www.stopald.org/news-1/2014/2/1/great-legislation-proposed-for-ald-newborn-screening-in-california monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/hrsas-secretary-advisory-committee-sac-unanimously-voted-in-favor-of-moving-ald-newborn-screening-forward-to-an-external-evidence-review-committee monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/ald-connect-produces-great-video-explaining-ald monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/new-york-state-to-screen-newborns-for-adrenoleukodystrophy monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/dr-cartier-lacave-inserm-paris-talks-her-work-with-gene-therapy-as-a-cure-for-ald-in-this-video-interview monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/october-2011-stop-ald-update-on-driving-forward-research-on-faster-therapies-for-children-in-immediate-need-and-research-on-anti-oxidant-effectiveness-on-amn-symptoms monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/february-2011-stop-ald-foundation-2010-accomplishments-and-2011-plans monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/december-2009-stop-ald-foundation-update-and-2010-goals monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/these-three-moms-are-on-a-mission-to-beat-the-genetic-disease-ald monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/gene-therapy-beats-back-brain-wasting-disease monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/science-hematopoietic-stem-cell-gene-therapy-with-a-lentiviral-vector-in-x-linked-adrenoleukodystrophy monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/la-times-gene-therapy-makes-major-stride-in-lorenzos-oil-disease monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/gene-therapy-success-in-severe-brain-disorder-applauded-by-the-stop-ald-foundation monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/nature-brain-disease-treated-by-gene-therapy monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/ny-times-after-setbacks-small-successes-for-gene-therapy monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/npr-rare-disease-treated-using-gene-therapy monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/bloomberg-gene-therapy-saves-two-boys-from-rare-brain-disease monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/wired-gene-therapy-halts-fatal-brain-disease monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/presentation-at-the-annual-american-society-of-hematology-ash-conference-hematopoietic-stem-cell-gene-therapy-trial-with-lentiviral-vector-in-x-linked-adrenoleukodystrophy monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/february-6-2008-the-stop-ald-foundation-supports-and-attends-the-symposium-on-x-linked-adrenoleukodystrophy-and-adrenomyeloneuropathy-in-memoriam-dr-hugo-wolfgang-moser monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/december-2007-stop-ald-foundation-update monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/article-in-nature-gene-therapy-sees-early-success-for-neurodegenerative-disease monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/press-briefing-the-first-gene-therapy-trial-using-hiv1-derived-lentiviral-vector-to-express-a-therapeutic-gene-in-human-hematoipoietic-stem-cells-preliminary-results-are-encouraging monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/european-society-of-gene-and-cell-therapy-esgct-the-xvth-annual-congress-of-the-european-society-of-gene-and-cell-therapy-held-in-rotterdam-the-netherlands-27-30-october-2007 monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/winter-20042005-stop-ald-foundation-update monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/2/1/2004-mediview-report-avoiding-the-misdiagnosis-of-adrenoleukodystrophy-distinguishing-ald-from-addadhd monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/1/31/october-2003-update monthly 0.5 2014-02-02 http://www.stopald.org/news-1/2014/1/31/april-2002-update monthly 0.5 2014-01-31 http://www.stopald.org/news-1/2014/1/31/worlds-leading-ald-and-gene-therapy-experts-meet-to-progress-a-cure monthly 0.5 2014-01-31 http://www.stopald.org/news-1/category/Conference+Presentation monthly 0.5 http://www.stopald.org/news-1/category/Therapy monthly 0.5 http://www.stopald.org/news-1/category/AMN monthly 0.5 http://www.stopald.org/news-1/category/Gene+Therapy monthly 0.5 http://www.stopald.org/news-1/category/Awareness monthly 0.5 http://www.stopald.org/news-1/category/Legislation monthly 0.5 http://www.stopald.org/news-1/category/Press+Release monthly 0.5 http://www.stopald.org/news-1/category/News+Coverage monthly 0.5 http://www.stopald.org/news-1/category/Update monthly 0.5 http://www.stopald.org/news-1/category/Clinical+Trials monthly 0.5 http://www.stopald.org/news-1/category/Prevention monthly 0.5 http://www.stopald.org/news-1/category/MSC+Therapy monthly 0.5 http://www.stopald.org/news-1/category/Video monthly 0.5 http://www.stopald.org/news-1/category/New+Born+Screening monthly 0.5 http://www.stopald.org/news-1/tag/AMN monthly 0.5 http://www.stopald.org/news-1/tag/ALD monthly 0.5 http://www.stopald.org/news-1/tag/Clinical+Trials monthly 0.5 http://www.stopald.org/team-ald-at-2014-million-dollar-bike-ride-for-rare-diseases daily 0.75 2014-05-09 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399612724545-2LJ8RI7MO1UWEEXS86TX/MDBR-Graphic.jpg Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399612724545-2LJ8RI7MO1UWEEXS86TX/MDBR-Graphic.jpg Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399611418259-WDOSNQP8MWX8K02ULZSJ/MDBR+2014+-+Most+of+Team+-+Standing.jpeg Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases - Most of Team - 1 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399611412066-OD64Y21VOAEQBHJIH2B0/MDBR+2014+-+Most+of+Team.jpeg Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases - Most of Team - 2 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399611417290-RCJH7P7F6QEC030C045L/MDBR+2014+-+Steve%2C+Lior%2C+and+Daniel.jpeg Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases - Steve Barsh & Lior and Daniel Yahalomi https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399611404903-1U5H2KIUZLZC7HG8ZYLQ/MDBR+2014+-+Linda+Bell+and+Friend.jpeg Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases - Linda Bell and friend https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399611406868-CF4029YCE82BIAH75Q3V/MDBR+2014+-+Steve+Barsh+and+Rich+Gottlieb.jpeg Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases - Rich Gottlieb & Steve Barsh https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399611410435-KVQB40Z8QSSYFLNNHI8K/MDBR+2014+-+Carlo+Russo.jpeg Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases - Carlo Russo https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399611420171-396209C0JSQEZI4VTS2W/MDBR+2014+-+Ride+Starting+Line.jpeg Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases - Starting Line https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1399612422952-TD4J9ESPINV86I7M0V4Q/Screen+Shot+2014-05-09+at+1.12.52+AM.png Team ALD at 2014 Million Dollar Bike Ride for Rare Diseases http://www.stopald.org/diagnosis daily 0.75 2024-02-12 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/19d425be-dee2-4eb2-8e60-97ea4c5085ae/ald-map-2024_orig.jpg Diagnosing ALD Image courtesy of the ALD Alliance https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395630211358-NKJGSDJ6NNAUTLLOQNED/differential+diagnosis Diagnosing ALD Physicians may consider referring to the following table when ALD is included as a differential diagnosis http://www.stopald.org/landing daily 1.0 2014-01-23 http://www.stopald.org/what-is-ald daily 0.75 2014-01-31 http://www.stopald.org/other-resources daily 0.75 2023-09-10 http://www.stopald.org/make-a-donation daily 0.75 2023-08-31 http://www.stopald.org/mission daily 0.75 2015-05-26 http://www.stopald.org/advisory-board daily 0.75 2017-03-07 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395634796673-7TZSSYO4LFEP1714SB48/Aubourg.jpeg Advisory Board https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395635182569-4VPLSURLVJW88A0C5I0Z/38581be.jpg Advisory Board https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395635703589-VRCGAZX1LFN1T1YTVBA0/Contrib_JamesWilson.jpg Advisory Board http://www.stopald.org/our-beginning daily 0.75 2014-03-24 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395639141940-3JJLB70U5UYC9Z22WAHC/image-asset.png Our Beginning http://www.stopald.org/frequenly-asked-questions-faqs daily 0.75 2018-10-13 http://www.stopald.org/treating-ald daily 0.75 2018-10-13 http://www.stopald.org/current-treatment-research daily 0.75 2021-02-01 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395632149786-92UQ43OALJB1TL8EOONV/image-asset.png Research & Clinical Trials http://www.stopald.org/team daily 0.75 2024-01-05 https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg Team https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg Team https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg Team https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg Team http://www.stopald.org/how-gene-therapy-works daily 0.75 2014-03-24 http://www.stopald.org/contact daily 0.75 2023-08-31