Amber Salzman, Ph.D.

Amber oversees and directs all work of The Stop ALD Foundation. Amber has overall responsibility for the Foundation's strategy, focus, execution, team development, and culture. In addition to Amber's role with the Foundation, she serves as the President and CEO of Cardiokine, a specialty pharmaceutical company focused on developing medicines to treat and prevent heart failure and related cardiovascular indications. Previously, Amber was with GlaxoSmithKline (GSK) for 25 years and as a member of GSK R&D executive team she was responsible for Operations for Medicine Development across therapeutic areas, planning and managing drug development projects and clinical trials with over 30,000 active patients around the world. Amber holds a Bachelor's degree from Temple University and a Ph.D. in Mathematics from Bryn Mawr College. Honors include being inducted into Temple University's League of Entrepreneurial Women Hall of Fame. Amber serves as an Advisory Board member for Drexel University's School of Public Health.


Dr. Rachel Salzman
Chief Science Officer

Dr. Salzman guides and directs all aspects of The Stop ALD Foundation's research. Dr. Salzman's day-to-day work includes advancing applied research and therapy development utilizing technologies including gene therapy, cell cloning therapy, vector technology, and stem cell therapy (including embryonic, mesynchymal, umbilical cord blood, and bone marrow). She takes an entrepreneurial approach to adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) therapy development and prevention. She works with researchers and makes presentations throughout North America and Europe. Dr. Salzman has also been a practicing equine veterinarian for nearly 15 years. Throughout her career she has focused on the practice of medicine while actively pursuing the latest research and medical advances. She received her Doctor of Veterinary Medicine from Oklahoma State University and BS in Animal Science from Rutgers University.  If you would like to discuss current therapy options or want to learn more about active research projects, please contact Dr. Rachel Salzman, The Stop ALD Foundation's Chief Science Officer, at


Bobby Lapin, Esq.
Development Director & General Counsel

Bobby heads up the fundraising efforts for The Stop ALD Foundation.  In this capacity, Bobby works with major foundations, corporations, and individuals on an ongoing basis so The Stop ALD Foundation has the funds necessary to find a cure for ALD as quickly as possible.  Bobby also is The Stop ALD Foundation's General Counsel, handing all legal matters.  Bobby is a founding partner of Lapin, & Landa, a well respected Houston law firm.  Bobby received his BA, with distinction, from Stanford University.  He received his JD, with honors, from the University of Texas.

Steve Barsh Headshot With Jacket WEB RES 200706.jpg

Steve Barsh
Vice President

Steve's work at The Stop ALD Foundation involves strategy, marketing, operations, and how to best leverage IT.  Steve has over 20 years of experience leading and building multi-national software and technology companies.  His experience ranges from starting companies and raising venture capital to leading a publicly traded firm and selling his first private firm to a Fortune 100 company.  He has held the CEO position in an Internet venture, software anti-piracy company, and a software engineering products and consulting firm.  He has worked as a VP in a Fortune 100 owning P&L responsibility.  He offers asales and marketing oriented leadership style coupled with a deep understanding of technology. Steve has been a sought-after speaker and spokesperson having delivered effective and persuasive presentations in North America, South America, Europe, Asia, and the Middle East.  His media appearances have included NBC Nightly News, CNNfn, CNBC, and a multitude of NBC, ABC, and CBS local affiliates.  Steve is a project faculty member of The Wharton School where he teachers in the Global Consulting Practicum program.  Steve graduated from the University of Michigan with a BS in computer science concentrating in software engineering.  He lives with his wife and two children in suburban Philadelphia.


Eve Lapin
Secretary & Treasurer

Eve graduated Magna Cum Laude with a BA in Computer Science from Temple University and was elected to Phi Beta Kappa.  She earned her Master of Social Work from the University of Houston and was elected to the Phi Kappa Phi honor society.