By including the links below, The Stop ALD Foundation does not necessarily endorse any of the organizations listed; nor do we vouch for the accuracy of the information contained on their respective web sites.

Sites that Discuss Adrenoleukodystrophy

For Physicians, Scientists & Healthcare Workers

Stem Cell (Cord Blood / Bone Marrow) Transplants Resources 

Leading Research Organizations


  • RARE Toolkits.  RARE Toolkits provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients.