By including the links below, The Stop ALD Foundation does not necessarily endorse any of the organizations listed; nor do we vouch for the accuracy of the information contained on their respective web sites.

Sites that Discuss Adrenoleukodystrophy

• ALD Connect

• The ALD Foundation

• ALD Life

• Leukodystrophy Family Forum

• Navigating ALD (by bluebird bio)

• Orpha.Net -- European Rare Diseases Organization and Their Discussion on ALD and many great links & resources

• The United Leukodystrophy Foundation

• US ClinTrial.gov -- Listing of ongoing US ALD clinical trials

• WikiPedia on ALD

• ItMightBeALD.com - Disease education site developed and hosted by bluebird bio, Inc

For Physicians, Scientists & Healthcare Workers

• Avoiding the Misdiagnosis of Adrenoleukodystrophy: Distinguishing ALD from ADD/ADHD

Stem Cell (Cord Blood / Bone Marrow) Transplants Resources 

• The Blood and Marrow Transplant Information Network

• Bone Marrow Donors Worldwide

• Duke University's Pediatric Stem Cell Transplant Program

• National Marrow Donor Program

• University of Minnesota: Fairview University

• The Cord Blood Banking Center - A service to help expecting mothers donate their cord blood or bank for their own purposes.

Leading Research Organizations

• Cochin Institute of Molecular Genetics (France)

• Kennedy-Krieger Institute

• The X-ALD Group at the Academic Medical Center (AMC)

OTHER

• RARE Toolkits. RARE Toolkits provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients.