New York State to screen newborns for Adrenoleukodystrophy

New York State to screen newborns for Adrenoleukodystrophy

BY: Metro Source Staff | April 03, 2013

ALBANY - In approving the 2013 budget, Governor Cuomo has approved funding for Aidan’s Law, a law that adds Adrenoleukodystrophy (ALD) to New York’s Newborn Screening panel.

The law is named for Aidan Seeger, a boy from Brooklyn, NY who suffered from the disease. Seeger passed away from ALD in 2012 at seven years old. ALD is a Leukodystrophy, as is Krabbe, the disease that Jim Kelly’s son, Hunter, suffered from.

ALD is an inherited metabolic disorder, which affects the nervous system and is usually fatal if not treated before symptoms appear. This devastating disease has an estimated incidence of 1 in 17,000 in boys. If untreated, those affected lose all voluntary muscle function, as well as vision and hearing, and eventually die.  Read more >>

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