The 2nd annual University of Pennsylvania Million Dollar Bike Ride (MDBR) for Rare Disease Research takes place May 9, 2015 in Philadelphia. For adrenoleukodystrophy (ALD) / adrenomyeloneuropathy (AMN), please help us hit our $50,000 goal by supporting us here.
It would be great if you could also join the ride. Sign up to ride here and select "Stop ALD" as the team you are riding for and "Registration without Fundraising"
The MDBR will match every dollar we raise so we can turn $50,000 into $100,000 for critical ALD/AMN rare disease research. Last year we raised $25,000 and that was doubled to $50,000. The University of Pennsylvania lead the section process awarding the $50,000 grant to a great ALD/AMN researcher at Mass General in Boston.
Please let us know if you have any questions and thanks in advance for your support!
Sincerely,
Steve Barsh & Amber Salzman
steve@barsh.com
+1.215.888.2101