Katharina Schwan, who studies genetic counseling at California State University in the San Francisco/Bay Area, is conducting a research study on families who have received a positive ALD newborn screening result. Participants receive $25 compensation for their time. Please click here for more information.
Research Study: Families in California who received a positive ALD newborn screening result
Exploring the impact of positive newborn screening results for X-linked adrenoleukodystrophy (X-ALD) among families in California